This blog is specifically about Multiple Sclerosis. In my life, it is a daily struggle because I have to remind those this claim to be taking care of me that I can’t hold a hot plate, and I choke easy. It never fails that I could be sitting in an odd position on the couch, and my grandson could be jumping around, and someone will hand me a full plate of hot food. Am I ungrateful? Do I not appreciate the food? noooooooo. I have specific skills with my disabilities that I have mastered over the years so I can live a semi-normal life. You would think that those who love me would not continue to ignore these entirely, but they do every day. They play pretend that I am not sick unless it is convenient, and the disability will humiliate me. Then my disability is funny. I have felt this way for years, and I continue to ask them not to do it. I do not want to be in the spotlight at every family gatherings or function. Therefore, I continue to master the skills so I can do things as normal as possible while being safe within my limitations.
Tonight we had been playing Rummy with my daughter and her boyfriend when my grandson went wild. He had been up since 5 am and had his share of Easter candy from his basket (yes, the basket was my fault). However, I peeled and cut up potatoes for David to fry for dinner (which he didn’t want to do), so he burned them. Then after he cooked dinner, he put a big hot plate of food in my hands while I was wrangling our sleepy/sugar rushed grandson. I got up and went to my bedroom. I was overstimulated and plain out mad!
I am sitting alone in my bedroom, and I have calmed down. I ate, and my grandson is asleep. I do believe it is time grandma takes her new prescription of Zolpidem so she can fall asleep too!
Love you all
Stay safe my Friends
Tina
Tonight we had been playing Rummy with my daughter and her boyfriend when my grandson went wild. He had been up since 5 am and had his share of Easter candy from his basket (yes, the basket was my fault). However, I peeled and cut up potatoes for David to fry for dinner (which he didn’t want to do), so he burned them. Then after he cooked dinner, he put a big hot plate of food in my hands while I was wrangling our sleepy/sugar rushed grandson. I got up and went to my bedroom. I was overstimulated and plain out mad!
I am sitting alone in my bedroom, and I have calmed down. I ate, and my grandson is asleep. I do believe it is time grandma takes her new prescription of Zolpidem so she can fall asleep too!
Love you all
Stay safe my Friends
Tina
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